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maui mama
Wednesday, October 17, 2007
  Slow Night in the ER
Saving Lives, Making a Difference!
The life-saving foley

Charlie's Angels



Oh! I almost forgot this one!



 
Saturday, October 06, 2007
  Polipoli
So, camp happened. What I mean by happened is that I didn't really want to go so I dragged my feet in planning it (no surf on a mountain, what to do, what to do?) But the girls insisted and so we went...

...and had so much fun!! We went off on a hike in the forest without seeing the map and without a clue on how long it was...I didn't even bring water Turns out the hike we went on was 5.6 miles!! It took forever and a day. (Good thing I left the twins at camp with hubby)
Polipoli is so high in the mountains we were frequently walking among the clouds.
Remnants of a recent forest fire:

dream-like beauty:Looking up:
Survivorman:
Helping Daddy make breakfast: (any shells in the eggs?)
An accidental bat to the face = laceration to eyebrow
Yes, this is the same guy having surgery on his skull. It is scheduled for December 14th.

I'll give you the basics: I asked the doc for a picture of an adult that did not have corrective surgery. She said she didn't have any...EVERYONE in the U.S. gets it done. I said is it done because we are a vain culture and have to look perfect? She said NO, it is done because it is to correct a birth defect, not to enhance. So not doing it is like not fixing a cleft palate.

The one thing that really convinces me to go ahead is that one day he will be 15, with enough self esteem issues as a teenager as it is, and he'll have to deal with a "boat-shaped" head with a high ridge on it that we had a CHOICE to fix when he was younger and we'll have to answer to him...why didn't we do it when we could??

His temple area is narrow, the same size as when he was born, since the suture on top of his head fused that early, and his face will continue to grow, and his skull will continue to grow lengthwise, not in width, it will look worse as he gets older. He'll never be able to play football or any sport that requires a helmet, he'll most likely be teased, etc.

We can't NOT do it.

So there it is, it is happening. Next move is to see an opthalmologist to see if he has any increased intracranial pressure. I just wish we were able to schedule all these doc appointments in one day instead of having to fly over each time.

He'll miss four weeks of school, and he'll have to wear a helmet for three months. (and for those who are wondering, no he can't wear a helmet itself to fix it, it wasn't that kind of craniosynostosis, and no he can't have the simpler operation because he is way past that age when his skull was softer, and lastly, no I am not suing the Pediatrician who missed it, he never meant to be negligent, things happen)
 
Monday, October 01, 2007
  Funkity Funk Funk
It's amazing how much pain you can physically feel from emotions. I feel like I'm being ripped apart, like I am breaking. All I want to do is hide under a rock until this is all over and come back when everything is hunky dory.
Tomorrow we are back on Oahu to see the cranio facial surgeon (the last time we saw the neuro surgeon, these two work together on the operation.)
More later..
 
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